When ALS is Lyme Disease

When ALS is Lyme Disease. 

Mackenzie tick B&W

Interesting book on ALS

and the Lyme disease connection.

http://www.als-cure.com/ALS.pdf

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TOUCHED BY LYME: “When the story of Lyme disease is written, it will be the story of patients standing up and being heard.”LymeDisease.org

Senators Kirsten Gillibrand, D-N.Y., and Richard Blumenthal, D-Conn., along with U.S. Rep. Chris Gibson, R-Kinderhook, have announced they will re-introduce legislation that would establish an advisory committee focusing on tick-borne diseases.

Words from our senators about Lyme:

Senator Gillibrand: “We need a better strategy than just checking our kids after a day at the park.”

Senator Blumenthal: “When the story of Lyme disease is written, it will be the story of patients standing up and being heard.

via TOUCHED BY LYME: “When the story of Lyme disease is written, it will be the story of patients standing up and being heard.”LymeDisease.org.

The Subversion of Modern Medicine

Would it surprise you to know that medical experts who write treatment guidelines have B I G – really B I G conflicts of interest?

“It is critical that experts who write clinical guidelines

be prohibited from having any conflicts of interest.”

Dr. Marcia Angell, former editor, New England Journal of Medicine

Read more here:

RTfinpresentation_finalpdf4_part2w.pdf – Google Drive.

Lyme and Congress

My family’s Lyme story is part of the 2012 Congressional Record, thanks to Senator Richard Blumenthal’s  (D-CT) request for testimony about Lyme disease.  This is what I had to say:

My family’s Lyme story is very similar to others you might know about. 

What is most disturbing is not the raging, undiagnosed and untreated infection we all contracted, that forever changed our lives, brought us to financial ruin and caused untold misery, is rather the way doctors treated my family.

Our many doctors  (pediatricians, primary care and specialists), over a twelve-year period while we sought a diagnosis and finally treatment, were unbelievably ignorant, obnoxious, belittling, arrogant, rude, demeaning, impatient and cruel.  They repeatedly laughed at us, sadistically told us we were crazy, claimed we exaggerated symptoms and said we could not understand the medical literature about Lyme. They exhibited a total disregard of human life by ignoring reported symptoms, not listening, disregarding and neglecting reports from other physicians who were treating us and ignoring published medical literature when we presented it to them.

Doctors repeatedly humiliated and undermined us. They told me I was an unfit mother, in front of our young daughter. They recommended institutionalization as the only way to handle our previously healthy and smart child, who now was suddenly physically disabled, learning disabled and mentally ill. Even after successful antibiotic treatment, their attitude and approach did not soften. They remained uncooperative, ignorant and arrogant.

The biggest wrongs – the way doctors treat patients and today’s culture of medicine.

http://www.prweb.com/releases/2012/9/prweb9918786.htm

Lyme Disease | United States Senator Richard Blumenthal

Senator Richard Blumenthal wants to hear from you.  N O W.

It is easy. Just say what is on your mind about Lyme.

Do this today. It is the last day to have your testimony part of the record.

Lyme Disease | United States Senator Richard Blumenthal.

As pretty as a picture but a lot more deadly: Killer diseases as youve never seen them before | Mail Online

This is what Lyme looks like:

Borrelia burgdorferi

Magnified 3550 times

From Wiki: Borrelia burgdorferi is a bacterial species of the spirochete class of the genus Borrelia, which has a double-membrane envelope.[1] B. burgdorferi is predominant in North America, but also exists in Europe, and is the agent ofLyme disease.

As pretty as a picture but a lot more deadly: Killer diseases as youve never seen them before | Mail Online.