Congressional investigation of the CDC, IDSA and ALDF

As civilized members of society, enjoying the wonders and advancement of medicine, science and so many things, it is very difficult to understand the the academic, medical, business and scientific handling of Lyme disease. When  I talk about Lyme people are incredulous that diagnosis and treatment of this infectious disease are as complicated as it is. They cannot comprehend that doctors are ill-informed, that insurance companies refuse to cover treatment, that there is no vaccination, no accurate test, no government support of research.

They cannot believe that doctors treating patients for Lyme with antibiotics are brought up on charges by medical societies. They are astounded that people die from Lyme.

Frankly, so am I.  Incredulous. Astounded. And really mad.

“In the fullness of time, the mainstream handling of chronic Lyme disease will be viewed as one of the most shameful episodes in the history of medicine because elements of academic medicine, elements of government and virtually the entire insurance industry have colluded to deny a disease.”

via Petition | The U.S. Senate: Calling for a Congressional investigation of the CDC, IDSA and ALDF | Change.org.

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The U.S. Senate: Calling for a Congressional investigation of the CDC, IDSA and ALDF | Change.org

“In the fullness of time, the mainstream handling of chronic Lyme disease will be viewed as one of the most shameful episodes in the history of medicine because elements of academic medicine, elements of government and virtually the entire insurance industry have colluded to deny a disease.”Mackenzie tick B&W

In the fullness of time, much is revealed and understood.  This will be true of Lyme disease and its co-infections and the role of government, medicine and insurance. It is shameful.

via Petition | The U.S. Senate: Calling for a Congressional investigation of the CDC, IDSA and ALDF | Change.org.

Student who contracted tick-borne illness on school trip awarded $41.7 million

tick

It is fairly easy to contract Lyme disease – most anywhere. 

Those who play field sports such as field hockey, golf, lacrosse, soccer … the teams, coaches, parents and fans usually sit on the sidelines watching the game. Many times the sidelines abut wooded areas. This is where the ticks are. On the sidelines.

Although this student did not contract this illness in this way it would behoove schools to pay attention to sports and ticks to avoid a similar law suit.

Connecticut student who contracted tick-borne illness on school trip awarded $41.7 million | masslive.com.

Bogus Grassroots Groups

Be careful – Bogus grassroots Lyme related organizations

Understand the organizations and the information they pass on.  

Remember, anyone can make a website.

LYMEPOLICYWONK: Bogus Grassroots Groups – Who’s Who and What’s What with the American Lyme Disease Foundation ALDF | LymeDisease.orgLymeDisease.org.

Lyme – “a shell of the woman I used to be”

Yolanda Foster – Real Housewife of Beverly Hills and touched by Lyme.

Yolanda-FosterLife is never the same once you contract Lyme disease, a killer bacterial infection that forever changes your health and life. Easy to get.  Hard to diagnose. Lasts a lifetime.

TOUCHED BY LYME: Lyme made her “a shell of the woman I used to be”LymeDisease.org.

What We Don’t Know About Lyme

“When a mysterious and debilitating illness overtook her and her family, the author struggled to find some answers. What she discovered about Lyme disease—and how little is actually known or agreed upon by the medical experts—is something everyone who goes outdoors should learn.”

Author of Cure Unknown, Pamela Weintraub, summarizes her family’s experience with Lyme. It is important to read as most of us believe – if you are sick from a tick bite, you go to the doctor and you will be healed, easily and quickly.  The reality is very different.tick_540x405

What We Don’t Know About Lyme : Experience Life.