Lyme – Controversy over how sick it makes patients

Good Boston Globe article on Lyme disease.  

Covers a lot of Lyme related topics, especially the controversial ones.

Click to read: tick_540x405

Lyme disease is on the rise, and so is controversy over how sick it makes patients – Metro – The Boston Globe.

Advertisements

Congressional investigation of the CDC, IDSA and ALDF

As civilized members of society, enjoying the wonders and advancement of medicine, science and so many things, it is very difficult to understand the the academic, medical, business and scientific handling of Lyme disease. When  I talk about Lyme people are incredulous that diagnosis and treatment of this infectious disease are as complicated as it is. They cannot comprehend that doctors are ill-informed, that insurance companies refuse to cover treatment, that there is no vaccination, no accurate test, no government support of research.

They cannot believe that doctors treating patients for Lyme with antibiotics are brought up on charges by medical societies. They are astounded that people die from Lyme.

Frankly, so am I.  Incredulous. Astounded. And really mad.

“In the fullness of time, the mainstream handling of chronic Lyme disease will be viewed as one of the most shameful episodes in the history of medicine because elements of academic medicine, elements of government and virtually the entire insurance industry have colluded to deny a disease.”

via Petition | The U.S. Senate: Calling for a Congressional investigation of the CDC, IDSA and ALDF | Change.org.

Was the Last Decade of Lyme Research a Cover-Up?

Was the Last Decade of Lyme Research a Cover-Up?

Lorraine Johnson and her correspondence with Phil Baker, PhD.

Well said, Lorraine.

Actually, this is a bit complicated.  For me, this is what it comes down to, paraphrased from the link here:

Public comments on scientific matters should be made with care and accuracy, without unsubstantiated, exaggerated, or premature statements.   It was this essential task that Dr. Phil Baker failed to do, with devastating consequences to Lyme patients.

(  Key words are highlighted in red.  )

Lots of the Lyme debate is “unsubstantiated, exaggerated …”   and well, laughed at and ignored. There is still much to be learned and discovered.  The consequences for those with Lyme and its co-infections are devastating and life changing.

LYMEPOLICYWONK: Was the Last Decade of Lyme Research a Cover-Up? Baker and the Embers Study Revisited. | LymeDisease.orgLymeDisease.org.

Student who contracted tick-borne illness on school trip awarded $41.7 million

tick

It is fairly easy to contract Lyme disease – most anywhere. 

Those who play field sports such as field hockey, golf, lacrosse, soccer … the teams, coaches, parents and fans usually sit on the sidelines watching the game. Many times the sidelines abut wooded areas. This is where the ticks are. On the sidelines.

Although this student did not contract this illness in this way it would behoove schools to pay attention to sports and ticks to avoid a similar law suit.

Connecticut student who contracted tick-borne illness on school trip awarded $41.7 million | masslive.com.

5 Tips for Surviving Herxing with Lyme

I would add to these 5 tips:

Be kind to yourself.

Stay in bed or on the couch. Don’t feel guilty about not doing laundry or going to work.

Call a friend, hopefully one who listens and gets Lyme.  Avoid friends who don’t.

Do maintain  your habits including  grooming habits:  shower, brush your teeth …  For me, I feel even worse when there are sweaters on my teeth.

Distract yourself. Watch a movie, read a book, draw. This is actually hard to do when herxing. Sometimes all I could do was count the cracks in the ceiling. It was amusing as I always came up with different counts.  Find the humor.  And embrace the fear

Stay positive: Repeat as necessary: “Herxing is not forever. I will feel better soon.” 

5 Tips for Surviving Herxing « LifeLoveLyme.

Lyme – “a shell of the woman I used to be”

Yolanda Foster – Real Housewife of Beverly Hills and touched by Lyme.

Yolanda-FosterLife is never the same once you contract Lyme disease, a killer bacterial infection that forever changes your health and life. Easy to get.  Hard to diagnose. Lasts a lifetime.

TOUCHED BY LYME: Lyme made her “a shell of the woman I used to be”LymeDisease.org.