On January 4, 2012, the Infectious Diseases Society of America posted the following question on its Facebook page. “What would you like to see from your society in the coming year?”
The organization’s PR people intended the question for their professional membership. Instead, Lyme patients throughout the US and around the world took notice and leapt at the opportunity to speak out against the IDSA’s Lyme treatment guidelines. Me included.
Read more of the IDSA public relations nightmare:
LymeDisease.org.http://lymedisease.org/news/touchedbylyme/serving-up-idsa-facebook-comments-congress.html
So the Lyme community took all the posts about what people wanted from the IDSA and put them into 274 pages. Printed up the books and distributed them to congress, the president, the media, the CDC and more.
Brilliant!
My post is on page 41 of this book.
TOUCHED BY LYME: Serving up IDSA Facebook comments to Congress |
Cynthia Leonard 